We have to be extra careful with Madeline's head, neck and back. Her large head puts a lot of strain on her neck and lower spine, and her neck and back muscles aren't very strong yet. If she sits up without support for too long or doesn't have firm back support, she could develop kyphosis (a hump in her back). Supporting her back while holding her is important.
There are also restrictions on the kinds of baby carriers and equipment we can use with her. Some infant swings allow too much of a curve in a baby's back or swing in a motion that could cause injury for a baby like Madeline. This swing (an awesome hand-me-down) has a solid, straight back that only elevates her head about 45 degrees. It also has a slow front-to-back gliding motion that is easy on her neck. Unfortunately for me, she has limited tolerance for this swing right now. I hope she starts to sit in it longer.
We need to avoid umbrella strollers because they have soft fabric backs and don't recline far enough. This European stroller (again, an amazing hand-me-down - we have some great friends) reclines almost completely. She is happy in it for a decent stretch.
I have read that the best place for babies with achondroplasia is the floor or some other flat surface. That would be fine with us...it's just not fine with Madeline. She would much rather be held. So at mealtimes Mike and I sometimes take turns holding her...
...but if we're lucky she sits near the table in her rocker. And it's another hand-me-down! I don't know what I'd do every day without this rocker. Soft slings or carriers that don't support her head and neck are highly discouraged. So, no Baby Bjorn or Moby wraps for us. But this rocker has the same solid, straight back and 45-degree angle that the swing/glider has. It's technically for newborns, but her size and the fact that she's not rolling yet will allow us to keep her in it for longer than usual.
The best part: SHE SLEEPS IN IT. Even on a bad nap day, odds are she'll at least take a catnap in her rocker. I think having her head a bit elevated makes it easier for her to breathe when she's congested.
But she would still rather be held.